Hi everyone! My name is Shannon Elliott and I am Brandon's little sister. Pictured below is my best friend, role model and big brother. One year ago, my brother's life changed drastically. I made this website in hopes to bring awareness to the very rare disease that Brandon was diagnosed with one year ago today, May 10, 2016. If you wish, please take the time to read up on Brandon's story and help raise monetary funds for those few people who are affected by this disease. For further details, questions or concerns please contact me through the contact button. Thank you!
I am guessing most of you visiting this page have never heard of this disease. I talk about it a little bit in Brandon's story, but I'll try to describe it a little more in depth right now. Leber's Hereditary Optic Neuropathy, also known as LHON, begins as a sudden, painless loss of central vision. It typically starts in one eye and progresses to the other eye in about eight months. This disease is the most common mitochondrial disease. What most people do not know about this disease is that it is genetic and gets passed down from the mother. So with that being said, a woman carrying an LHON mutation will pass it to all of her children; men will not. I am sure most of you are wondering how an LHON patient sees on a daily basis. I ask my brother often and the best way he can describe it to me is by visualizing a donut. The hole in the donut is what he cannot see, however, it is important to note that the vision he sees outside of the donut hole is not clear because peripheral vision does not allow one to focus in on what is being seen. I hope this has helped you become somewhat familiar with what this disease actually is. To learn more about this disease and how it can affect someone's life, please read up on my brother's story. I thank you all ahead of time!